The Human Genome Project and the Future of Health Care

The Human Genome Project and the Future of Health Care

Edited by Thomas H. Murray, Mark A. Rothstein, and Robert F. Murray, Jr.
Distribution: World
Publication date: 12/1/1996
Format: cloth 264 pages, 1 figures
6.125 x 9.25
ISBN: 978-0-253-33213-4
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“The volume deserves our serious attention. The authors have provided us an invaluable primer about the HGP and its implications for the future of American health care.” —Jurimetrics

“This book does make a real contribution . . . in explaining why the genetics
revolution holds so much promise and why it is so difficult to bring that promise to fruition.” —The Journal of Legal Medicine

“. . . marked by a forward-looking, analytically and empirically grounded thematic coherence. The editors’ carefully crafted template and contributions successfully focus and organize the material.” —Annals of Internal Medicine

“Excellent” —Canadian Medical Association Journal

“The editors have done a very good job integrating the contents into a very useful and readable information source.” —Choice

“ . . . this highly focused book is a well-written, thoughtful, and insightful consideration of the HGP and is valuable reading for anyone concerned with the future of our country's medical infrastructure.” —Science Books & Films (**Highly recommended)

“A distinguished group of scientists, lawyers, and scholars have written a coherent, readable account of the legal, medical, ethical, and policy issues many (if not all) of us will be wrestling with on both a personal and a public level , as a result of current genetic research.” —Library Journal

“Each of the contributors is a distinguished authority on the topic. Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the society debate.” —Doody’s Health Sciences Book Review Home Page

How will the science of gene mapping and gene manipulation affect health care? Leading scholars explore the clinical, ethical, legal, and policy implications of the Human Genome Project for the forms of health care, who delivers it, who receives it, and who pays for it.

Author Bio

THOMAS H. MURRAY is Professor and Director of the Center for Biomedical Ethics at Case Western Reserve University. MARK A. ROTHSTEIN is Hugh Roy and Lillie Cranz Cullen Distinguished Professor of Law and Director of the Health Law and Policy Institute at the University of Houston. ROBERT F. MURRAY, JR. is Chief of the Division of Medical Genetics in the Department of Pediatrics and Child Health, and Professor of Pediatrics, Medicine, and Genetics at Howard University.

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Table of Contents

Introduction: The Genome and the Future of Health Care

Thomas H. Murray
1. The Impact of Mapping the Human Genome on the Physician Patient Relationship

Albert R. Jonsen
2. Educating Clinicians about Genetics

Vincent M. Riccardi
3. Medicine, Gene Therapy, and Society

William J. Polvino and W. French Anderson
4. The Genome Project and Health Services for Minority Populations

Herbert Nickens
5. Genetics and Reproductive Decision Making

Mary Anne Bobinski
6. Access to the Genome and Federal Entitlement Programs

Maxwell J. Mehlman
7. The Implications of the Human Genome Project for Access to Health Insurance

Deborah A. Stone
8. Genetics and Employment: More Disability Discrimination

Adrienne Asch
9. The Human Genome Project and the Distribution of Scarce Medical Resources

Norman Daniels
10. The Human Genome Project: Its Impact on Medical Practice

Robert F. Murray, Jr.
11. The Genome and Access to Health Care: Two Key Ethical Issues

Thomas H. Murray
12. The Genetic Factor in Health Care Reform: Framing the Policy Debate

Mark A. Rothstein